"I’m enormously proud of what has been created here in Wales during the COVID pandemic. It shows what can really be achieved when true innovation is embraced, and I cannot underestimate the dedication and commitment of the team at ICST and Professor Chris Davies, without whose expertise none of this would have been possible.”
DR SIMON BARRY, NATIONAL RESPIRATORY CLINICAL LEAD, NHS WALES
"Excellent. This platform deserves every award it gets"
DR. MARK TAUBERT, PALLIATIVE CARE CONSULTANT
“Certainly, in secondary care across Wales, it’s been recognised that the platform has been fantastic during the COVID pandemic, for us to have rapid updates on hospital care for an area which has been obviously very confusing, worrying and often with conflicting information. I think that when you have these pathways on this interactive setting, it can really help you tease out what you need to do.”
DR. TOM PEMBROKE, CONSULTANT HEPATOLOGIST
“It takes commitment from all involved in delivering these pathways, from the health board, the ambulance service and Welsh Government, to be committed to delivering something on a national scale that offers the patient the best possible outcome. It’s going to reduce avoidable hospital admissions, GP services are going to be supported because they are not out there by themselves, you’ve got community teams, ambulance services, primary care and secondary care all working together for the best outcomes of these patients.”
MIKE JENKINS, CONSULTANT PARAMEDIC
“If we look back at the first version of the framework, a massive amount of work went into this, literature searches, and we produced a 26-page document which was really detailed. But not the sort of thing that your average clinician in the middle of a busy phone surgery or clinic, could access and maybe get the answer they needed to manage that patient in front of them. Hence, we have moved to this new platform, so that we’ve got the plan on a page, the pathway on a page, where all the information is accessible within two or three clicks.”
DR ALASTAIR ROEVES, NATIONAL CLINICAL LEAD FOR PRIMARY CARE AND COMMUNITY CARE IN WALES
“I’ve been really excited to see how the pathway that we wrote has come to life in this far more dynamic tool that’s available; that’s updated, that’s current and available for practitioners, reducing ambiguity and ensuring consistency of management”
DR MARK WALKER, SENIOR MEDICAL OFFICER, CO- AUTHOR OF THE LONG COVID MANAGEMENT GUIDELINE
“We wrote this guideline originally because we wanted to ensure that when patients presented, they were recognised as having the condition that they have, that they were supported in a proportionate and reasonable response, utilising the app where appropriate, having the additional support of the multidisciplinary team, but in those rare instances where there were concerns and red flags, that more urgent referral was undertaken.”
DR MARK WALKER, SENIOR MEDICAL OFFICER, CO- AUTHOR OF THE LONG COVID MANAGEMENT GUIDELINE
“I hope that this guideline raises the awareness of Long COVID, so that all HCPs can develop a wider understanding of Long COVID, acknowledging its existence and that it affects many different people in different ways. So, wherever you live in Wales, you should expect to see an HCP informed by the knowledge and tools and with access to the right services to manage long COVID sensitively, appropriately and timely”
DR FIONA JENKINS (MBE), EXECUTIVE DIRECTOR OF THERAPIES AND HEALTH SCIENCE IN CARDIFF AND VALE UHB AND CWM TAF MORGANNWG UHB
“The app is easy to use, helps you track the intensity of activities and there are videos with extra information. Haven't found another app like this! Great you guys made this!”
LONG COVID PATIENT
“Thank you so much for the video-it is brilliant. I am really impressed with how you have picked out key messages, I am actually feeling quite overwhelmed watching it.”
CONSULTANT IN SEXUAL HEALTH AND HIV, CARDIFF AND VALE UHB AND LONG COVID PATIENT WHO FILMED A PATIENT CASE STUDY ABOUT THE STRUGGLES OF RETURNING TO WORK
“I have been using the app for over a week now and the content is helping me understand how long covid is impacting me and starting to help me”
LONG COVID PATIENT USING THE COVID RECOVERY APP
“I like this app to keep track of my energy levels. I hope it will help me get fitter, I have been struggling with Long Covid for more than 6 months. I'm Dutch and it's actually strange that this app is only meant for people in Wales, while people everywhere could benefit. The app is easy to use helps you track the intensity of activities and there are videos with extra information. Haven't found another app like this! Great you guys made this!”
LONG COVID PATIENT USING THE COVID RECOVERY APP
“Early research findings were presented to the Welsh Government in the Technical Advisory Group (TAG) and Vaccination Clinical Advisory and Prioritisation group (COVID-VCAP) in January and February 2021. This formed part of the evidence used in formulating government policy on enhanced vaccination of inpatients.”
STUDY CO-AUTHOR PROFESSOR STEPHEN JOLLES, A CONSULTANT IMMUNOLOGIST AND LEAD FOR THE IMMUNODEFICIENCY CENTRE FOR WALES